Today is the start of EB Awareness Week and I just had to share this post on "EB"ing a Mommy. It is written by the mother whose son suffers from EB and when I say suffers I mean suffers. Suffering like you and I could never ever probably survive. Tripp is 2 years old, has a trach, a feeding tube, and has lost his eye sight due to EB and his body is covered in painful sores. Any little amount of friction causes painful blistering of his skin. This includes the inside of his mouth. Can you even imagine? And yet in the videos his mommy posts his beautiful spirits shines through and you can tell he is a joy and a delight to be around. He certainly is one of God's favored and I have to believe that with the amount of people who pray for him on a daily basis that perhaps he was brought here to show us how to pray for others and how to believe that our faith can make a difference. His mommy's strength and faith in God amazes and inspires me as does tiny little Tripp's. Even though I've never met this family I don't think I can express how much Tripp's story has touched me and how much I love this little boy.
So what can you do?
I made my donation and you can, too. 1 in 50,000 babies will be born with EB. How easily can it be you or I in this situation, mothering a child with this terrible, incurable disease? What is $10 worth to you? A weeks worth of Starbucks? A lunch out during the work week? A new book? How about a child's life? And the $10 goes directly on your cell phone bill.
We are so blessed in our lives. Please take a minute out of your life to share, educate, donate and do what you can to help spread awareness and find a cure for EB.
"Once our eyes are opened, we can’t pretend that we don’t know what to do. God, who weighs our hearts and keeps our souls, knows that we know and holds us responsible to act.” -Proverbs 24:12
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